Today is my 6th re-birthday. Six years ago I got the bone marrow transplant that saved my life. I can’t believe it has been 6 years. It seems too short a time for what I have gone through and yet seems so long ago when my whole life changed.
I watched Mamma Mia during my transplant. I was higher than a kite while on morphine and apparently was belting out Dancing Queen so loud the nurses could hear me at their station.
I watched it again today and as I was singing along to Dancing Queen, I just lost it. I am so blessed to be alive and I don’t take that for granted. But I have been through so damn much in these 6 years and the 6 months preceding the transplant when I was first diagnosed. It all just hit me while singing that song.
I was in the hospital for 44 days after the transplant trying to recover enough to be able to go home. Two months after the transplant my father passed unexpectedly. I am so thankful the test results came back saying the transplant was a success just days before he passed. Fourteen months later my father-in-law passed from the cancer he got from Agent Orange. My family faced 3 devastating loses in 3 years.
Yes, I count myself as one of those losses. The old Marissa is gone. A new one was reborn. It has not been an easy journey. Seems like every year I gather more rare or major medical problems. This is not the life I thought I would have seven years ago.
Earlier this month my family went to Disneyworld. This was a dream vacation for us that I wanted to do without a wheelchair. Not only did I not need the wheelchair, but I ended up walking 56 miles in one week! It was the vacation of a lifetime.
So while I have had many, many struggles, I am doing okay. I may not be the Dancing Queen I once was, but I am good for at least one dance. I can sing along even if my voice isn’t as strong as it used to be, my heart still is!